Resources

Calvert M, Kyte D, Price G, VAlderas JM, Hjollund NH. Maximising the impact of patient reported outcome assessment for patients and society. BMJ 2019;364:k5267.

Greenhalgh J. The applications of PROs in clinical practice: what are they, do they work, and why? Qual Life Res. 2009;18(1):115–123.

Higginson IJ, Carr AJ. Measuring quality of life: using quality of life measures in the clinical setting. BMJ (Clin Res Ed). 2001;322(7297):1297–1300.

Lohr KN, Zebrack BJ. Using patient-reported outcomes in clinical practice: challenges and opportunities. Qual Life Res. 2009;18(1):99–107.

Osoba D, Translating the science of patient-reported outcomes assessment into clinical practice. J National Cancer Inst Monogr. 2007;37:5–11.

Valderas JM, Kotzeva A, Espallargues M, et al. The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature. Qual Life Res. 2008;17(2):179–193.

Tracking progress and evaluating treatment

Coon CD, McLeod LD. Patient-reported outcomes: current perspectives and future directions. Clin Ther. 2013;35(4):399–401. doi:10.1016/j.clinthera.2013.01.012

Espallargues M, Valderas JM, Alonso J. Provision of feedback on perceived health status to health care professionals: a systematic review of its impact. Med Care. 2000;38(2):175–186.

Valderas JM, Alonso J, Guyatt GH. Measuring patient-reported outcomes: moving from clinical trials into clinical practice. Med J Aust. 2008;189(2):93–94.

Boyce MB, Browne JP. Does providing feedback on patient-reported outcomes to healthcare professionals result in better outcomes for patients? A systematic review. Qual Life Res. 2013;22(9):2265–2278.

Boyce MB, Browne JP, Greenhalgh J. The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research. BMJ Qual Saf. 2014;23(6):508–518.

Espallargues M, Valderas JM, Alonso J. Provision of feedback on perceived health status to health care professionals: a systematic review of its impact. Med Care. 2000;38(2):175–186.

Greenhalgh J. The applications of PROs in clinical practice: what are they, do they work, and why? Qual Life Res. 2009;18(1):115–123.

Hill JC, Whitehurst DG, Lewis M, et al. Comparison of stratified primary care management for low back pain with current best practice (STarT Back): a randomised controlled trial. Lancet. 2011;378(9802):1560–1571.

Linton SJ, Halldén K. Can we screen for problematic back pain? A screening questionnaire for predicting outcome in acute and subacute back pain. Clin J Pain. 1998;14(3):209–215.

Mierzynska J, Piccinin C, Pe M, Martinelli F, Gotay C, Coens C, Mauer M, Eggermont A, Groenvold M, Bjordal K, Reijneveld J. Prognostic value of patient-reported outcomes from international randomised clinical trials on cancer: a systematic review. The Lancet Oncology. 2019 Dec 1;20(12):e685-98.

Snyder CF, Aaronson NK. Use of patient-reported outcomes in clinical practice. Lancet. 2009;374(9687):369–370.

Snyder CF, Jensen RE, Segal JB, Wu AW. Patient-reported outcomes (PROs): putting the patient perspective in patient-centered outcomes research. Med Care. 2013;51(8 Suppl 3):S73–S79.

Basch E, Deal AM, Dueck AC, et al. Overall survival results of a trial assessing patient-reported outcomes for symptom monitoring during routine Cancer treatment. JAMA. 2017;318(2):197–8.

Coon CD, McLeod LD. Patient-reported outcomes: current perspectives and future directions. Clin Ther. 2013;35(4):399–401.

Fitzpatrick RM, Fletcher A, Gore S, Jones D, Spiegelhalter D, Cox D. Quality of life measures in health care. I: Applications and issues in assessment. BMJ (Clini Res Ed). 1992;305(6861):1074–1077.

Greenhalgh J, Meadows K. The effectiveness of the use of patient-based measures of health in routine practice in improving the process and outcomes of patient care: a literature review. J Eval Clin Pract. 1999;5(4):401–416.

Lohr KN, Zebrack BJ. Using patient-reported outcomes in clinical practice: challenges and opportunities. Qual Life Res. 2009;18(1):99–107.

Detmar SB. Use of HRQOL questionnaires to facilitate patient-physician communication. Expert Rev Pharmacoecon Outcomes Res. 2003;3(3):215–217.

Holmes MM, Bishop FL, Newell D, Field J, Lewith G. Chiropractors’ views on the use of patient-reported outcome measures in clinical practice: a qualitative study. Chiropr Man Therap. 2018;26(1):50.

Newnham EA, Page A. Bridging the gap between best evidence and best practice in mental health. Clin Psychol Rev. 2010;30(1):127–142.

Santana M-J, Feeny D. Framework to assess the effects of using patient-reported outcome measures in chronic care management. Qual Life Res. 2014;23(5):1505–1513.

Wright JG. Evaluating the outcome of treatment. Shouldn’t We be asking patients if they are better? J Clin Epidemiol. 2000;53(6):549–553.

Reflection and empowerment

Feldman-Stewart D, Brundage MD. A conceptual framework for patient-provider communication: a tool in the PRO research tool box. Qual Life Res. 2009;18(1):109–114.

Santana M-J, Feeny D. Framework to assess the effects of using patient-reported outcome measures in chronic care management. Qual Life Res. 2014;23(5):1505–1513.

Tracking and self-management

Kearney N, McCann L, Norrie J, et al. Evaluation of a mobile phone-based, advanced symptom management system (ASyMS©) in the management of chemotherapy-related toxicity. Supportive Care Cancer. 2009;17(4):437–444.

Maguire R, Ream E, Richardson A, et al. Development of a novel remote patient monitoring system: the advanced symptom management system for radiotherapy to improve the symptom experience of patients with lung cancer receiving radiotherapy. Cancer Nurs. 2015;38(2):E37–E47.

Santana M-J, Feeny D. Framework to assess the effects of using patient-reported outcome measures in chronic care management. Qual Life Res. 2014;23(5):1505–1513.

Wright JG. Evaluating the outcome of treatment. Shouldn’t We be asking patients if they are better? J Clin Epidemiol. 2000;53(6):549–553.

Bitton A, Onega T, Tosteson ANA, Haas JS. Toward a better understanding of patient-reported outcomes in clinical practice. Am J Manag Care. 2014;20(4):281–283.

Boyce MB, Browne JP. Does providing feedback on patient-reported outcomes to healthcare professionals result in better outcomes for patients? A systematic review. Qual Life Res. 2013;22(9):2265–2278.

Boyce MB, Browne JP, Greenhalgh J. The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research. BMJ Qual Saf. 2014;23(6):508–518.

Chang CH. Patient-reported outcomes measurement and management with innovative methodologies and technologies. Qual Life Res. 2007;16(Suppl. 1):157–166.

Detmar SB. Use of HRQOL questionnaires to facilitate patient-physician communication. Expert Rev Pharmacoecon Outcomes Res. 2003;3(3):215–217.

Fung CH, Hays RD. Prospects and challenges in using patient-reported outcomes in clinical practice. Qual Life Res. 2008;17(10):1297–1302.

Greenfield S, Nelson EC. Recent developments and future issues in the use of health status assessment measures in clinical settings. Med Care. 1992;30(5 Suppl):Ms23–Ms41.

Greenhalgh J, Long AF, Flynn R. The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory? Soc Sci Med. 2005;60(4):833–843.

Greenhalgh J, Meadows K. The effectiveness of the use of patient-based measures of health in routine practice in improving the process and outcomes of patient care: a literature review. J Eval Clin Pract. 1999;5(4):401–416.

Higginson IJ, Carr AJ. Measuring quality of life: using quality of life measures in the clinical setting. BMJ (Clin Res Ed). 2001;322(7297):1297–1300.

Hvitfeldt H, Carli C, Nelson EC, Mortenson DM, Ruppert BA, Lindblad S. Feed forward systems for patient participation and provider support: adoption results from the original US context to Sweden and beyond. Qual Manage Healthcare. 2009;18(4):247–256.

Lohr KN, Zebrack BJ. Using patient-reported outcomes in clinical practice: challenges and opportunities. Qual Life Res. 2009;18(1):99–107.

Marshall S, Haywood K, Fitzpatrick R. Impact of patient-reported outcome measures on routine practice: a structured review. J Eval Clin Pract. 2006;12(5):559–568.

Santana M-J, Feeny D. Framework to assess the effects of using patient-reported outcome measures in chronic care management. Qual Life Res. 2014;23(5):1505–1513.

Snyder CF, Aaronson NK. Use of patient-reported outcomes in clinical practice. Lancet. 2009;374(9687):369–370

Snyder CF, Aaronson NK, Choucair AK, et al. Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Qual Life Res. 2012;21(8):1305–1314.

Basch E, Deal AM, Dueck AC, et al. Overall survival results of a trial assessing patient-reported outcomes for symptom monitoring during routine Cancer treatment. JAMA 2017;318(2):197–8.

Bitton A, Onega T, Tosteson ANA, Haas JS. Toward a better understanding of patient-reported outcomes in clinical practice. Am J Manag Care. 2014;20(4):281–283.

Boyce MB, Browne JP. Does providing feedback on patient-reported outcomes to healthcare professionals result in better outcomes for patients? A systematic review. Qual Life Res. 2013;22(9):2265–2278.

Boyce MB, Browne JP, Greenhalgh J. The experiences of professionals with using information from patient-reported outcome measures to improve the quality of healthcare: a systematic review of qualitative research. BMJ Qual Saf. 2014;23(6):508–518.

Calvert M, Kyte D, Price G, VAlderas JM, Hjollund NH. Maximising the impact of patient reported outcome assessment for patients and society. BMJ 2019;364:k5267.

Chang CH. Patient-reported outcomes measurement and management with innovative methodologies and technologies. Qual Life Res. 2007;16(Suppl. 1):157–166.

Coon CD, McLeod LD. Patient-reported outcomes: current perspectives and future directions. Clin Ther. 2013;35(4):399–401.

Detmar SB. Use of HRQOL questionnaires to facilitate patient-physician communication. Expert Rev Pharmacoecon Outcomes Res. 2003;3(3):215–217.

Espallargues M, Valderas JM, Alonso J. Provision of feedback on perceived health status to health care professionals: a systematic review of its impact. Med Care. 2000;38(2):175–186.

Feldman-Stewart D, Brundage MD. A conceptual framework for patient-provider communication: a tool in the PRO research tool box. Qual Life Res. 2009;18(1):109–114.

Fitzpatrick RM, Fletcher A, Gore S, Jones D, Spiegelhalter D, Cox D. Quality of life measures in health care. I: Applications and issues in assessment. BMJ (Clini Res Ed). 1992;305(6861):1074–1077.

Fung CH, Hays RD. Prospects and challenges in using patient-reported outcomes in clinical practice. Qual Life Res. 2008;17(10):1297–1302.

Greenfield S, Nelson EC. Recent developments and future issues in the use of health status assessment measures in clinical settings. Med Care. 1992;30(5 Suppl):Ms23–Ms41.

Greenhalgh J. The applications of PROs in clinical practice: what are they, do they work, and why? Qual

Life Res. 2009;18(1):115–123.

Greenhalgh J. The applications of PROs in clinical practice: what are they, do they work, and why? Qual Life Res. 2009;18(1):115–123.

Greenhalgh J, Long AF, Flynn R. The use of patient reported outcome measures in routine clinical practice: lack of impact or lack of theory? Soc Sci Med. 2005;60(4):833–843.

Greenhalgh J, Meadows K. The effectiveness of the use of patient-based measures of health in routine practice in improving the process and outcomes of patient care: a literature review. J Eval Clin Pract. 1999;5(4):401–416.

Higginson IJ, Carr AJ. Measuring quality of life: using quality of life measures in the clinical setting. BMJ (Clin Res Ed). 2001;322(7297):1297–1300.

Hill JC, Whitehurst DG, Lewis M, et al. Comparison of stratified primary care management for low back pain with current best practice (STarT Back): a randomised controlled trial. Lancet. 2011;378(9802):1560–1571.

Holmes MM, Bishop FL, Newell D, Field J, Lewith G. Chiropractors’ views on the use of patient-reported outcome measures in clinical practice: a qualitative study. Chiropr Man Therap. 2018;26(1):50.

Hvitfeldt H, Carli C, Nelson EC, Mortenson DM, Ruppert BA, Lindblad S. Feed forward systems for patient participation and provider support: adoption results from the original US context to Sweden and beyond. Qual Manage Healthcare. 2009;18(4):247–256.

Kearney N, McCann L, Norrie J, et al. Evaluation of a mobile phone-based, advanced symptom management system (ASyMS©) in the management of chemotherapy-related toxicity. Supportive Care Cancer. 2009;17(4):437–444.

Linton SJ, Halldén K. Can we screen for problematic back pain? A screening questionnaire for predicting outcome in acute and subacute back pain. Clin J Pain. 1998;14(3):209–215.

Lohr KN, Zebrack BJ. Using patient-reported outcomes in clinical practice: challenges and opportunities. Qual Life Res. 2009;18(1):99–107.

Maguire R, Ream E, Richardson A, et al. Development of a novel remote patient monitoring system: the advanced symptom management system for radiotherapy to improve the symptom experience of patients with lung cancer receiving radiotherapy. Cancer Nurs. 2015;38(2):E37–E47.

Marshall S, Haywood K, Fitzpatrick R. Impact of patient-reported outcome measures on routine practice: a structured review. J Eval Clin Pract. 2006;12(5):559–568.

Mierzynska J, Piccinin C, Pe M, Martinelli F, Gotay C, Coens C, Mauer M, Eggermont A, Groenvold M, Bjordal K, Reijneveld J. Prognostic value of patient-reported outcomes from international randomised clinical trials on cancer: a systematic review. The Lancet Oncology. 2019;20(12):e685-98.

Newnham EA, Page A. Bridging the gap between best evidence and best practice in mental health. Clin Psychol Rev. 2010;30(1):127–142.

Osoba D, Translating the science of patient-reported outcomes assessment into clinical practice. J National Cancer Inst Monogr. 2007;37:5–11.

Santana M-J, Feeny D. Framework to assess the effects of using patient-reported outcome measures in chronic care management. Qual Life Res. 2014;23(5):1505–1513.

Snyder CF, Aaronson NK. Use of patient-reported outcomes in clinical practice. Lancet. 2009;374(9687):369–370.

Snyder CF, Aaronson NK, Choucair AK, et al. Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations. Qual Life Res. 2012;21(8):1305–1314.

Snyder CF, Jensen RE, Segal JB, Wu AW. Patient-reported outcomes (PROs): putting the patient perspective in patient-centered outcomes research. Med Care. 2013;51(8 Suppl 3):S73–S79.

Valderas JM, Alonso J, Guyatt GH. Measuring patient-reported outcomes: moving from clinical trials into clinical practice. Med J Aust. 2008;189(2):93–94.

Valderas JM, Kotzeva A, Espallargues M, et al. The impact of measuring patient-reported outcomes in clinical practice: a systematic review of the literature. Qual Life Res. 2008;17(2):179–193.

Wright JG. Evaluating the outcome of treatment. Shouldn’t We be asking patients if they are better? J Clin Epidemiol. 2000;53(6):549–553.